• Home
  • Understanding CTE
    • What is CTE?
    • Professional Information
  • About Us
    • Our Story
    • The People
    • Working Together
  • Get Support
    • National CTE Support
    • Participant Information
  • Get Involved
    • Resources
    • Donations & Fundraising
    • Media
    • Podcasts
    • TACKLE CTE
  • Get Help
  • Home
  • Understanding CTE
    • What is CTE?
    • Professional Information
  • About Us
    • Our Story
    • The People
    • Working Together
  • Get Support
    • National CTE Support
    • Participant Information
  • Get Involved
    • Resources
    • Donations & Fundraising
    • Media
    • Podcasts
    • TACKLE CTE
  • Get Help

WHAT IS CHRONIC TRAUMATIC ENCEPHALOPATHY (CTE)?

CTE is a type of dementia (degenerative brain disease) caused by many repeated injuries to a person’s brain. 


CTE has been linked to the exposure of repeated head knocks/impacts, injuries and concussions from high head impact activities, sport and workplaces, along with violence and other activities impacting brain and head safety. It is thought that brain vibration, inflammation, damage and a person’s genetic profile may play a role in the development of CTE dementia. 


Those at higher risk of CTE are people who have experienced repeated concussive and sub-concussive head impacts over a period of time. 


Reducing head impacts and brain injuries along with concussion management are essential steps to preventing CTE.    


CTE cannot be diagnosed with clinical certainty until after death as no definitive tests exist for living individuals. Instead, a medical specialist relies on a comprehensive clinical assessment to diagnose probable or suspected CTE. This assessment factors in the patient's personal background, history of repeated head injuries, and observed symptoms of cognitive impairment. Investigations and evaluations may typically involve:

  • A thorough review of medical history and symptoms
  • A physical examination
  • Imaging studies of the brain (e.g. CT, MRI, PET)
  • Testing of blood and urine
  • Psychiatric and mental state assessments
  • Functional testing of memory and cognition (likely to include neuropsychological testing, OT assessments, and other relevant assessments)

When other conditions have been eliminated as the cause and the symptoms align with the pattern of the disease, a specialist may formally diagnose the condition as probable or suspected CTE (and/or other relevant diagnosis). 

When we protect brains, we protect lives.

What else do we know about CTE?

  • You’re unlikely to develop CTE from only one or a few knocks to the head.  
  • Repeated knocks to your head damage your brain over time. 
  • If a person is suspected to have developed CTE, avoiding alcohol, smoking and illicit substances is important to minimise the worsening of symptoms and progression of the disease.    
  • There are probable risks associated with people sustaining repeated head knocks and injuries and drinking alcohol or using illicit substances. 
  • CTE is often seen in people who have played contact sports or sports with risk of head knocks, experienced assaults, have been in active war zones or exposed   to explosions, and have experienced multiple falls with head knocks.  

Concussions and sub-concussions or impacts to the head can cause unseen injury to the brain.

Our medical and research experts for CTE advise that both concussion and sub-concussions contribute to CTE, empahising the importance of being aware that even without clinical symptoms, damage to the brain can occur. 


The Brain Foundation helpfully describes a concussion and sub-concussion. 

  • A concussion is a type of mild traumatic brain injury that can occur when the head or body experiences a sudden impact or jolt. 
  • The impact causes brain strain with resultant inflammation, damage to neurons, and a change in your metabolic state.
  • Concussion was once believed to be a minor injury that does not cause ongoing complications. However, new research has found that 20-50% of patients report persistent side effects beyond one month.
  • A sub-concussion refers to head injuries that do not result in the clinical symptoms of a concussion but can carry less, equal or greater force than a concussion.


ConneCTErs Australia's take home message is aligned with the experts saying, "if in doubt, sit it out." This is to give the brain time to recover even when there are no signs or symptoms. 


Concussion: Symptoms, Treatments, and Understanding 

Thinking

Thinking

Thinking

  • Memory loss
  • Cognitive difficulties and changes 
  • Learning difficulties 
  • Poor concentration 
  • Confusion
  • Loss of sense of direction 
  • Brain fog 
  • Headache or head pressure
  • Increased disorientation
  • Struggling to remember names of people and things
  • Unexplained stopping mid-conversation

Mood

Thinking

Thinking

  • Anxiety and panic attacks
  • Unexplained worrying and sadness
  • Depression 
  • Suicidal thinking 
  • Impulsivity 
  • Loss of empathy
  • Rollercoaster emotions and difficulties regulating mood
  • Reduction in desire to socialise

Behaviour

Behaviour

Behaviour

  • Rage and unexplained anger
  • Agitation
  • Loss of motivation
  • Reduced social activity 
  • Wandering 
  • Slowness or Parkinson's-like changes
  • Noticeable changes to personality and out of character behaviour
  • Difficulties coping
  • Repeating stories and being stuck on topics that cause increased emotions

Function

Behaviour

Behaviour

  • Noticeable decreases in some body functions (ie. walking steady, swallowing, coordination)
  • Experiencing difficulties with talking and finding words
  • Difficulties with cooking 
  • Difficulties with driving 
  • Changes in ability doing jobs or tasks that were previously easy or routine

DO YOU?

 Do you have a history of

  • head knocks?
  • brain injury/brain injuries?
  • playing contact sport?
  • engaging in activities that resulted in knocks to the head?
  • working in an industry that involved head knock exposure?
  • experiencing recurrent assaults? 
  • repeated concussions? 

DID YOU KNOW?

It has been commonly reported by people with suspected and probable CTE that they feel isolated, unheard, misdiagnosed, symptoms dismissed, and/or not progressed for further investigations and assessments.  


If any of the above head or brain history applies to you along with symptoms, it is important to discuss with your General Practitioner and/or a health professional for consideration of a referral to a specialist. 

ASK US!

If you have difficulties getting help, contact us today and we will be sure to listen and suggest pathways that may assist with your healthcare journey.  

support@connecters.org.au

Copyright © 2026 ConneCTErs Australia - All Rights Reserved.


Powered by

This website uses cookies.

We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

Accept